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25 years.  Two and a half decades, 300 months, 9131 days (including the six leap years between 2000 and 2025). And I still want more.

On this day, 25 years ago, I married my wife, and my wife married me.  We got married to each other, and it was the best and smartest thing I (we!) have ever done. And, despite the crazy, overwhelming, and overly-stressful experience that getting married can be, I would do it again.  (But I am so very happy I don’t have to. Seriously, getting married is a lot of work. Easiest if you only have to do it once.)

Being married, when you are married to your forever person, is worth everything.  It’s worth the years of learning each others habits, and the noises we make both awake and asleep.  It’s worth the middle of the night wake ups because one of you isn’t well; it’s worth the inconsolable tears because the baby won’t stop screaming; it’s worth never having the house to ourselves because we made a home for so many people. It’s worth the having to deal with so many more bodily fluids than anyone ever prepared us for – the spit-ups and the puke, the feces and urine, the blood and the tears and the sweat and the never ending cycle of laundry that goes with it.

It has been 25 years of some of the hardest work I have ever done, and it was easy because it was us, every day. 25 years, with children and parents and friends and family and food and drink and laughter and tears. 25 years of people coming into our lives and people leaving our lives; of people helping us and needing our help; of knowing what’s next and having no idea what’s even happening right now.

And all of it, all of it, has been so better, so much more fun, because we did it all together (even when we’re apart.)

Some notable highlights from our marriage:

  • We have two grown children, one of whom is married, and both of whom have amazing partners.  It is a special kind of satisfaction to see your kids with partners who make each other happy and fulfilled.
  • We have a home that others call home.  Our home has been a centre of life for so many people over the decades, sometimes just for meals, sometimes just for brief chapters of life, but always with an open door, plenty of food and drink, and a welcoming haven for however short or long it’s needed
  • We have an unusual and remarkable extended family.  We have been attached to the African branch of the family (hello all you Samas!) since our daughter was born, adding more than half a dozen people to our immediate circle of family.  They have enriched both our lives and children’s lives, and our children count them among their siblings. My eldest child has introduced our kids to their extended siblings, expanding our family even further.  We have been host to individuals in need of a home and a family, sometimes just for hours, sometimes for months. Every one of you has been important to us, and every relationship has left its impression on our marriage.
  • We’ve had a few pets over the years: Mason the wonder dog, Teillard the anxious, Granny Chai, Bruce the Cat, The Lady Jessicat, Paddington Murphington, Mocha (the house major-domo), and now The Twins: Mr. Hobbes and Cuddly Casey.
  • We bought a house, and we have lived in it now for 18 of our 25 years, which marks the longest either of us has lived in one place.
  • E-bikes. (Amazing.)
  • We have been through the births of two children, the deaths of two parents, a gall bladder removal, decades of depression, more than a decade of chronic migraine, anxiety, ADHD, numerous degrees and graduations, funerals, weddings, our house full to bursting with dinner parties and brunches, D&D campaigns, birthday parties, and sleepovers.
  • Cancer. (Sucks.)
  • Sometimes, very rarely (although a little more often these days) a quiet, empty house with just the two of us.

When we got married (25 years ago you guys! 25!) Father Rolf blessed/cursed us on the alter with his recognition that our relationship, and consequently our marriage, was about being a host family to the people in the world who needed it.  We laugh about it often, and cry about it sometimes, but it truly has been the central focus of our marriage.  Our home is and always has been open to anyone, especially those in need, whether that need is a bed, a meal, or just a conversation.  It hasn’t always been easy, and we have often craved just a little more room for ‘just us.’ But that craving has never been so strong that we have closed our doors.

The people who have been in and moved through our home and our lives have enriched the experience of our lives and contributed so much meaning to our marriage that it is impossible to think back our life together without including all of you.

Not that there hasn’t been plenty that has been private to Carol Anne and I (although ‘private’ has never really been all that important to either of us.)  But in those quiet, private times, we often reflect on how much we love each other, still. Perhaps, if it’s possible, even more than when we started.  We recognize how fortunate we are to have found each other, and how happy we are to have said yes to each other.  We are blessed to know that everything we do together, even the hard stuff (especially the hard stuff) is better and more fun because we are doing it together, and because we get to do it together.

Many, many years ago, a couple of years even before we were married, Carol Anne and I shared a kiss.  Some of you have heard this story in detail, some of you have not.  I will not go into details here, but it is important to know that we kissed.

Oh what a kiss.

I got butterflies in stomach during that kiss.  So did Carol Anne.

When I woke up the next morning, I still had those same butterflies.  So did Carol Anne.

When I think back to that kiss, in the foyer of a townhouse in Ottawa during the sunset years of the 20th century, I get those butterflies all over again.  So does Carol Anne.

‘For better or for worse’ say those marriage vows, famously.  Really, it’s for better and for worse.  And when we are together, even the worse is better.

June 10th, 2000 to June 10th, 2025.  25 years and counting.  Life is tricky.  Everything about his point in history, both personally and collectively, is hard and challenging and uncertain.  We don’t really know how many more days, months, and years are allotted to us, not how these times will unfold.

But, we’ll take whatever days are given to us, however it is we have to take them.  And as many of them as we can share with all of you, we’ll do that too!

We have a party coming up to celebrate just that!  Many of you we will see there! Many we will not (because of distance and time.  If we failed to send you an invite, please forgive us – our memories are not what they used to be! Feel free to show up!) And at this party yes, we will be celebrating Carol Anne and I, but we will also be celebrating all of you who have been a part of our marriage and our lives. We never wanted to do this without you, and we are thrilled to be able to celebrate with you.

So here’s to 25 years of marriage, and as many more as the universe will grant us.

Our love to you all, Carol Anne and Morgan.

Hi, this is Carol Anne. It’s time for a long overdue update! There is a bunch of news here, so take your time.

The good news is: I am now done chemotherapy treatments and they seem to have successfully kept the tumor from progressing!

Back in March I was experiencing neuropathy in my right foot. At that point we dropped the Vincristine part of my chemo treatment (the ‘V’ in the PVC treatment) but continued with the P-C pill-based drugs. April 22nd I met in person with my medical oncologist who was surprised at how well I looked and how well I was doing. I was in really good shape, so we decided to continue with round five of chemo. Three rounds is what most of the studies are based on; four is the desired standard; and five was a bonus! However, six has been cancelled.

Ten days later, during round five of chemo, I had a seizure. It took me three days to ‘recover,’ but it has all but grounded me. Thanks to Diane and Saanich recreation I am back in my twice a week exercise class. I am keeping my core strong and I continue to build torso strength and maintain my balance. But I am no longer riding my bike and I am not allowed to drive, so I am dependent on others for rides everywhere. This lack of independence sucks.

The Provincial Tumor Board met on Friday where my case was discussed. Aside from the pathologist being all excited about my pathology report, the result has not changed: it’s still an oligodendroglioma, so we’ve picked the right treatment and for the most part it’s been working.

MRI Updates: I had my first post radiation MRI in December. It showed two areas of new intracranial mass. The next MRI in February showed the same. We repeated the MRI in May, but had a fancy perfusion MRI which can differentiate between radiation necrosis and new growth. The May 4th MRI was taken to the provincial tumour board for review. (We just got an update this week which is why this update is so delayed as we wanted more information.)

The tumor board has confirmed, and everyone around it was an agreement, that the two new masses are radiation necrosis, not tumour growth. To the chemo people this is good news because it means their treatment worked and the problem is with radiation, so the radiation folks have to fix it. I have an appointment with my radiation oncologist this coming Thursday June 12th.

The challenge of radiation necrosis is that it is two masses in my right temporal lobe which are causing all sorts of symptoms. These masses are probably what triggered the seizure, and all the symptoms I had before my surgery are back and worse. I’m losing my sense of balance. My energy levels are exceptionally low. My memory and thought processing is compromised. The depression is back, and my ability to plan and make rational decisions is compromised. I have a pronounced tremor. At this point I am on steroids in the hopes that this will reduce the swelling of these masses and improve my symptoms. In the meantime, I am very dependent on the kindness of others in my family to feed myself get myself around and make all decisions.

Hello family and friends!  We have been overdue for a public update on all things Sargent, so I thought I’d stop and write something out.  Some of you will already have some (or all) of this news, but others of you we haven’t had a chance to catch up with yet.

Carol Anne is in the midst of her fourth cycle of chemotherapy.  This cycle is a little bit different for her, as she is no longer starting and finishing the cycle with Vincristine. Her oncologist, after reviewing her progress, identified that she is experiencing more side effects (largely neuropathy?) that benefits from that drug; the literature suggests that the treatment is not significantly less effective without it, so it has been dropped for the remainder of her treatments, much to Carol Anne’s delight.

Additionally, she has now had two MRIs since finishing radiation treatments.  The scans still aren’t pretty, and we do not yet have definitive evidence of tumor regression <sigh> so there is another MRI planned for the near future.  What it has been showing is what the oncologists and surgeon are pretty sure is “pseudo-progression.” Carol Anne’s research suggests that this would be a good sign, as it is evidence that the brain is responding to the treatment the way it is supposed to, so we are holding on to that optimism until we have a reason not to.

Other than that, Carol Anne is continuing to handle the chemo treatments pretty well, fatigue notwithstanding.  However, she is getting bored and she misses people.  Please feel free to come visit!

As spring promises that it will make its presence known, our small pride of cats is getting more and more anxious to be outside!  To this end, we have procured and assembled a kitten coop for the front yard!  It is still very sparse, but we have plans to fill it with various levels and obstacles for them to play on while they watch birds and insects in the garden.  If you have ideas, or if you’d like to contribute some materials, please let me know! The Twins will very much appreciate it.

Speaking of the Twins, they are much larger than they used to be!

(Chai wants you to admire her new haircut)

I am stepping back into the world of paid work!  I have sent out a number of applications to teaching jobs in the past month, and I have also started talking with some folks about various bits of teaching work (some of which I am already doing!) I am very happy to be teaching again, even if it is still just in small amounts. I have missed (almost) everything about it a great deal (not the report card bit, though.  Happy to not be doing that!)

I am also sending my novel around to various readers for feedback!  Yes, I completed a novel at the beginning of the year – just a simple little mystery-style novel.  It is the first of a series of novels that I have planned out.  Over the course of writing and developing it I decided that I wanted this book to be very accessible. By this I mean that I have set out to write and lay out the novel to make it more accessible for readers who have challenges with text that aren’t traditionally recognized or accommodated. Specifically, I am trying to make the book more accessible for ADHD, dyslexic, and autistic readers, as well as readers who have difficulty reading for long periods of time at a sitting. .

To this end, I have employed fonts that are designed to be more easily read by those who have challenges with traditional fonts.  I have also taken the detective-noir convention of the ‘overly-self-aware’ narrator and leaned into it so that questions of intent, sub-text, and meaning are more clear and explicit. And finally, I have used extensive dialogue and frequent paragraph and chapter breaks to make the layout easier, to make it easier to take breaks, and to make it easier to keep track of characters and story points.  

I am hoping to be able to compile the feedback, make any last edits necessary, and send it out to agents and publishers before my birthday this year – a little 50th birthday present to myself.

If you are interested in being an early reader and providing me with feedback, please let me know and I will share a copy of the book (digitally) and a list of questions I’m looking for feedback on!

Finally – Weddings!  There are two weddings in the family coming up quickly. 

My second-born child Nathan and his fiancee Zoe are getting married at the end of May in Ottawa.  Myself, Martin and Zamira, and Kathleen and Matthew will all be there. (The schedule for the week doesn’t work for Carol Anne, who will still be finishing chemo treatments at that point so she’ll spend some time in Toronto with her sister instead.)

And – our niece Sarah and her fiance Ben are also getting married this summer, and we will all be traveling to the interior for that as well!  Lots of travel and family coming up and we are looking forward to all of it.

Phew! Okay, that’s the quick and dirty update! 

 We love you all and we look forward to seeing you soon!

Hi everyone,

My goal was to have the draft of Chapter 2 roughly done and posted three days ago, but taht did not happen. BUT, the chapter is progressing well, and I am now aiming to post it by the end of day Friday.

As you can see from the picture, some of the delays are unavoidable, as Hobbes as need of my lap regularly, and he cannot get comfortable if I’m typing. Please forward any complaints to him.

I also wanted to take this opportunity to mention that I will be largely exiting the Metaverse by the new year. Most of my content will be taken down, and I’ll really only be using it to direct people here. I’m giving Mastadon and Bluesky a try – we’ll see what happens there.

Keep watching this space! Chapter 2 coming soon.

Among the many things that I am finding challenging these days (and there is no shortage of options) is reconciling all the apparent and emerging contradictions that have become so much of the texture of our lives. 

It has been barely four months since the discovery of Carol Anne’s brain tumor, and yet it feels like years have passed since that day.  Between the end of June and the beginning of November, our family has experienced the following:

  • Carol Anne’s brain tumor discovery
    • And brain surgery!
  • A wedding
    • That included family getting together for the first time in years, or for the first time ever!
    • And also included time in a different hospital for Carol Anne’s mom, Jane
  • Kathleen moved to a new city, with a new husband, to start a new program
    • Marking also the first time for both Kathleen and Matthew moving in with a roommate! 
  • Carol Anne’s very involved brain cancer diagnosis
    • Which also precipitated the start of cancer treatment
    • So we (I say “we”, but really it was just Carol Anne) went through 33 radiation treatments
  • Zamira starting a new program
  • Squeezed in a flying trip by the whole family to Toronto for Jane’s funeral between radiation treatments
  • The addition of two new kittens to the household!
  • The loss of three cats to the household: two who moved away with Kathleen and Martin, and one who sadly and unexpectedly died.
  • Martin starting a new job
  • Carol Anne starting the first of 6 courses of chemotherapy

…and this list is not exhaustive!  

Because, of course, there are also all those trivial things that make up the details of everyday life: laundry, shopping, vacuuming, yard maintenance, cleaning of kitchens and bathrooms, home maintenance and improvements (did I mention we are about to have solar panels installed?,) homework and exams, visiting and staying connected with friends and family, learning new patterns of eating and living, and so many more details that they all start to blur into that mosaic background that makes up all of our lives.

Through it all, I have been struck, as if with snowballs in the back of my head thrown by some perversely comic and cosmic angel, with the contradictions of our life right now. 

The first, biggest, and most overarching  contradiction is this: we are in the midst of some of the hardest times in our family’s life, and yet these are some of the best and closest times we have had as a family. We are more grateful for each other and our time together than at any other point, too.  As a family that has worked hard to be there for others, to be available and ready with advice or, a meal, or even just space to listen, we have suddenly found ourselves in need of help.  And the outpouring of love and support from our community, from all of you, has filled us with love and strength at a time when we have been at our weakest and most vulnerable.

Carol Anne is now on long-term disability, and I haven’t worked in almost 2 years. And so our time is a contradiction between having an abundance of available time, and being bound to an ever evolving and increasingly exhausting life of appointments, medications, exhaustion and recovery.

Which leads to the forever contradictory and centering experience of time.

Just before Carol Anne went into surgery, way back in the waning days of June, to have that pesky tumor removed, I looked at her and said: “I want 25.” We didn’t really know what was going on yet, beyond the fact that she had a brain tumor.  We barely knew enough at that point to have any good questions!  But one of the questions that kept throwing itself into my awareness was the question of time: how much of it did she have, did we have? We celebrated our 24th wedding anniversary this past June (one of the many things not included in the opening list!) just 17 days before that surgery. As she was being taken away from me to have cancer removed from her brain, I was absolutely certain that I was not ready to lose her.  I needed more time. “I want 25” was me saying that (and a lot more, but that’s for a different time) to her.

Between the surgery and the time we were finally told the specifics of the diagnosis, we lived in a kind of suspended time of not knowing: not knowing what to expect or how bad to expect it to be; not knowing, what we could safely hope for or what we could try to fight and strive for; not knowing what to research and learn about (an anti-anxiety activity for both of us.) It forced us to return to the moment, over and over, and to be grateful for that time.

But this didn’t mean we were always successful.  There were days, evenings, afternoons, when the awareness of all the time that might be taken from us was present and heavy.  Our plan was to grow old together, and now it looked like we could no longer look forward to those days, nor to so many of the others that we had planned for and imagined. It was an effort, in those moments, to let the anger and resentment and sadness and disappointment have their time – their moment – and then let them go, and return to the gratitude.

So, when we did receive the details of the diagnosis and her treatment and the prognosis, and the indicators all pointed to much more time than we had let ourselves hope for, it felt like an amazing gift. We were being given years  that we thought had been taken out of reach. And although the years may be many fewer than we had hoped for long ago in the before cancer days, from our new vantage point on time, years seemed so, so good.

(So, barring the unforeseen, it looks like we’re going to get our 25, although Carol Anne may still be going through the last of her chemo cycles at that time. In fact, we’ve set a new number as our anniversary goal, and if we make it there we will be satisfied, and we will take every year, every day, beyond that as bonus time.)

Included in this strange context of time is the contradiction in health that Carol Anne continues to experience.  At a time when Carol Anne has felt better and more herself than she has in years, if not decades, her cancer treatment is a strange game of introducing particles and chemicals into her system that make her feel worse in order to make her better. Between the enforced time away from work and taking “medicine” that makes her feel sick, she is having….well, we both are having to remind ourselves and each other that she has cancer. Brain cancer.  And the time she has to give to fighting the cancer now is so that we can have the years that we so desperately crave.

Which leads to the underlying contradiction – the contradiction between baffling surreality and sobering reality.  

My wife has brain cancer. Brain cancer!  This is not something real – this is a plot device in movies and shows to take a character or a plot in a different direction.  This is sad news that we hear about from celebrities and influencers. So discovering that it is real, and that it is residing in my wife’s brain inspires a disconnect from reality, a warping of what can and cannot be expected in life.  

And at the same time, the phrase “my wife is being treated for brain cancer” also inspires a sobering focus of energies. There is no cure, only treatment, and the prognosis is statistical, not specific. So, although there are good indicators and reasons to be hopeful, we really won’t know how effective the treatment will be until she’s gone through it.  And as she is now halfway through the first course of chemo chemicals, we are starting to learn how she reacts to the drugs. We are both figuring out what symptoms to pay attention to, what foods to prepare and how, and how to get through the tougher moments of the chemical war being waged in her body in the name of treatment.  

We are all living in contradictory times!  These are times of abandon and restraint, of acceptance and intolerance, of unshakeable certainty and baffling uncertainty, and so many other dichotomies energies in tension.  

These are the days when you hear more and more often: “Many things can be true at the same time.”

Academically, intellectually, this is easy to accept.

Psychologically, deep down in the soul, it is less easy. It takes intent, and practice.

And so I – we – practice.

As that slapstick angel continues to lob snowballs at my awareness, I call to mind that verbose practitioner of the written word, Charles Dickens, who once quipped:”It was the best of times, it was the worst of times.” He might have been on to something.

My father-in-law and close friend Robert Sims was on to something, too, when he taught me that the resolution to unavoidable contradictions is found in paradox.

How are we doing? We are doing paradoxically.  We are going through incredibly hard times very well. We are accepting time as it is given, and we are avariciously seeking more. We live with the gravity of the situation while we float and marvel at the strangeness of it all. And we look forward to the time we have with each other and with all of you, in all of its precious paradox.

Look, I have been very optimistic, and continue to be so throughout my entire journey, however it’s freaking November so cut me some slack! 

Well, it’s November. I have always disliked November. In every place I’ve lived in Canada, November has been an unattractive month. The leaves are mostly down, the sky is grey, and the days are short and getting shorter. You can’t start preparing for Christmas until Advent begins, so in the meantime, life feels grey and dark, and the promise of light seems far away. As someone who deals with SAD, November feels like a journey into the abyss, with February, with its longer days and promise of spring, being a much better place to be. 

This year, November 1st has dawned as grey and dismal as I have ever seen it. It is wet, grey, dark, and miserable, and it is still dark at 8:30 a.m. <Deep sigh.> Every year, November 1st is an exercise in counting days and buoying myself up with gratitude and moments of celebration throughout the month. These areas of celebration are threefold – birthdays, convocation, and Grey Cup football. 

Birthdays – My birthday falls one week into November. This year, I will be turning 56, undergoing chemotherapy, and for the first time ever, I have no parents to tell me my birth story. The day after my birthday would have been my mother’s 85th. This year, for the first time in 56 years, we are not celebrating together. For the past few years (since her 80th and a couple before), I have made the effort to travel to Toronto for our birthdays and get my sister to host a birthday party for us. I am glad that I did this. I am also feeling a bit relieved that not spending our birthday together this year is not because of my treatment, but rather because she is in a better place. My family here in Victoria is happy to have me here this year. No big plans yet, but a low-key celebration is in order. 

Convocation – Every year, UVic holds its fall convocation in November alongside the winter reading break. I always volunteer because it is such a great time of celebration in the dark season. As an administrator, seeing the happy faces of family and students as they celebrate this accomplishment reminds me why I do what I do. Of course, this year, I am not doing what I do. Instead, I am focusing entirely on being well and getting through chemotherapy for a brain tumour. Given where the cycles fall, I cannot safely volunteer at convocation this year, and that is a bit of a bummer! 

The Grey Cup – I know, I know, how old must you be to follow Canadian football! But yes, I am that old, and the Grey Cup is just a tradition I was raised with. With all other traditions falling flat this year, I am planning to make the Grey Cup matter! What is more, the Grey Cup is in Vancouver this year. In a different health environment, I would try to get tickets! I remember when I was a student in Ottawa in 1988 (I know, before many of you were born). The city absolutely came alive and celebrated. It does not matter whether the home team makes it (that year was BC/Winnipeg), a party is held! Bars were open on both sides of the river until 3 a.m. I was a student and couldn’t afford tickets, but one day, it is my dream to get to a Grey Cup game! 

Despite the gloominess of November and the challenges it brings, I’m determined to focus on what I can control and manage my PCV chemotherapy in the best way possible. PCV chemotherapy, which stands for Procarbazine, CCNU (Lomustine), and Vincristine, is a rigorous regimen, but I am finding ways to cope and maintain my spirit. 

Firstly, I’ve built a strong support system around me.  

Family – Morgan, my husband and life source is unfailingly present.  He is generally cooking for me, shopping and entering into my distractions – solar power, new bed, jigsaw puzzles, etc.  He is awake when I vomit at night, and he listens to my TMI.  I could not be luckier! Martin is solicitous and we are spending more time together than we have had the opportunity to spend together in several years.  Kathleen and I talk most days as she is walking home from school and that is fantastic to be able to catch up on her day and distract from mine. 

Friends and roommates – Andrew and Anika are around each day, keeping me and Morgan from getting too deeply into ourselves.  Martin and Zamira add to the company keeping me from getting bored. 

Kittens – OMG.  These two little creatures are a going concern!  Between moments of tearing the house apart in rapid games of chase – and sleeping hard to support their growth, Casey is known to crawl under the covers with me, or to sit on my chest (at the neck) to purr when I am up in the middle of the night. 

I am doing my best to incorporate some light exercise into my day, but I think I need to be a bit more demanding of myself on that front.  And still, when the side effects of chemotherapy hit hard, I allow myself the grace to rest and recover without guilt. I know I can get through this and I am focussing on the future as much as the present to make it happen.  

The occasional pity party is allowed; just don’t overstay your welcome! 

Lastly, I’ve found that staying mentally active and engaged is crucial. Whether it’s through listening to music, or a podcast, working on a puzzle, or writing in my journal, these activities keep my mind sharp and in shape. 

Although November is a challenging month and PCV chemotherapy a demanding treatment, I’m committed to facing each day with resilience, gratitude, and hope. It’s not an easy road, but with the support of my loved ones, a balanced lifestyle, and a positive outlook, I’m finding ways to navigate through the darkness and focus on the light ahead. 

OK it’s  time for an update. My surgery was on June 27th and at that time the neurosurgeon, Doctor Fleetwood, told me he believed he got all the visible and hopefully most of the tumour. The tumour was sent to pathology and he told us that it was likely cancerous.  If you don’t want the agonizing wait that we had, click here to skip ahead.

I was released from the hospital on Sunday June 30th and happily went home feeling better than I had in months. My brain was working in a way it hadn’t for a long time, both with thinking and with motor skills. I started weaning off the steroid, sleeping better, and, by the end of the week, the deep depression that I had been feeling for months, maybe even years, had completely vanished.

Meanwhile, on July 2nd I received a phone call from Dr. Fleetwood, letting me know that the Vancouver Island pathology lab had identified my tumour as a primary [which means that it originated in the brain] malignant glioma. However, he told me, there were a few things they weren’t sure of, and they wanted to send the sample to Vancouver for a second opinion. He told me that I would hear from the local BC cancer clinic soon, and that they would generally handle things from here on.

I spent a lot of the month of July attending follow up doctor’s appointments which included having my stitches removed, seeing my ophthalmologist, and backing up on several other appointments that I’d had along the way. For instance, in the act of searching out what was wrong with me I had had a psychological assessment done; the results of the assessment were in for a final review, and I met with the doctor announcing plot twist- turns out I had a brain tumour!  I ended up having approximately 3 of these appointments with a psychiatrist, a naturopath and a psychologist.

As I was feeling better than I had in a very long time, we chose to celebrate that and threw ourselves into Kathleen and Matthew’s wedding- for more details on the wedding see Morgan’s post – Easily in my top three weddings

Once the wedding was over it got quiet briefly. We cleaned the house, did some yard and garden work, and then we got kittens, Casey and Hobbs – a pair of brothers from Salt Spring island who have brought great joy to our household.

And we continued waiting. As many of you know, neither Morgan nor I, nor the children we created, work well in a vacuum without a lot of information.  Although we are prepared to turn on a dime, and go with the flow, we like to start with plans, back-up plans, escape plans, and possible variations based on as much information as we can gather.  The six weeks spent not knowing what was in my head, and only knowing “Don’t Google!”  Everybody’s tumour is unique and the internet is extremely terrifying when you Google ‘brain cancer’.  

We did our best to continue living in the present and celebrating the present, but it was really hard not knowing how to plan for the future. On the trip back from picking up the kittens, my phone rang and, once again, it was the surgeon. He was letting me know that the Vancouver pathology lab was also questioning the results, and they wanted  to send my sample to the US to the National Institute of Health for further study. In order to send any part of my body outside of the country they needed my verbal permission. I immediately gave that permission, and the wait continued.

The following Friday, I finally received a phone call from the new patient intake with the BC Cancer centre. They were calling to set up an appointment with me with the radiation oncologist for the following Thursday afternoon. We had almost a week to wait.

We did 4 puzzles to pass the time and pretended the wait wasn’t killing us. Finally, the appointment comes, not surprisingly we arrive 20 minutes early, this allows me to fill in the necessary forms, and almost on time we are called in to weigh in and measure my height. Then we were put into a waiting room and told that the doctor will be with us soon. Almost half an hour later, a resident comes in, asks a few questions, does a few tests, and continues to tell us nothing. We are sitting in the most uncomfortable chairs in the entire world, and I say to Morgan “I better not learn I’m dying in these chairs.”

Finished with us, the resident goes to get the doctor and says they’ll be right back. Half an hour later the doctor finally shows up, with the resident, and he takes another 5 minutes pulling up the chart and the MRI’s. He finally (finally!) tells us that I have a glioma and in particular that it is a grade 3 Oligodendroglioma (aka Oligo, aka OG). This is a reasonably rare form of brain cancer, and we are becoming minor experts on the markers, the history, the treatments, etc.  The great news is that I have all the markers that suggest treatment will be very successful – the bad news is I have about 9 months of treatment ahead of me.

Finally, we had something to research and research we began; Morgan is somewhat of an expert now and the news looks really good.  A week later, we met Dr Fundytus, my medical oncologist, and his med student Kendrew.  They were late for my appointment because they were talking about how interesting and rare my tumour and its markers are.  Dr Fundytus shared with us that he was called to triage my tumour, before all the additional testing, and he didn’t want anything to do with it. But, after all the tests, it turns out that it is simple, straight forward, and very treatable – he thinks we may never see a recurrence; but it’s cancer, so no promises can be made.  A key part in avoiding a recurrence, is a fairly intense chemotherapy approach called PCV. So, for those of you who are interested, here are the treatment plans.

Treatment plans

Radiation treatment begins August 26th with 33 consecutive days of radiation (weekends and stat holidays off) that will finish October 11th.

After the radiation, I start six courses of PCV two weeks later and, if all goes well, I will be completing by mid-July 2024.  

The side effects of both treatments range from deep fatigue to downright scary – after all, as my medical oncologist says, you are getting your brain microwaved and who can predict what will come of that.  The good news about side effects is that there are many treatments for those side effects, and not all side effects actually happen.  

Where are we now?

We are in a hopeful place, connected to a great system, but totally unsure what the next nine months will bring.

How can you help?

I have started an Amazon wish list with a few distractions (puzzles mainly) and funny things like gentle shampoo, caps, etc.  Please do not feel obliged, but we are learning to ask for help.  If meal support is your interest, please consider gift cards for Fresh Prep as we will be trying to keep a healthy diet. 

If you are in Victoria – please come visit!  For the radiation portion of this event, we will continue to have an open door household – just be prepared that I might be napping, or cranky.  During the chemotherapy portion of this event, anticipate a COVID-esque household: don’t come by if you are sick; expect to see masks, or be asked to wear one;and  anticipate extra handwashing and germ controls.  Please text Morgan or myself (DM if you need the number) to see if it’s a good time to drop by.

Again, radiation, foregoing any bizarre reactions, we are anticipating to be non-challenging.  Chemo is unknown and we will provide regular updates. 

Thank you for taking the time to read!  Trying to get around to update each person individually is getting very challenging, so many updates will be posted here in the future.  Please feel free to share this with others who are interested!

Thank you again from all of us.

I love weddings!  This is not a secret: I tend to mention it (a lot!) whenever the topic of weddings is brought up.  That having been said, it should be noted that I never, ever want to have another wedding.  Being married is wonderful; getting married is horrible. 

This is reason enough to enjoy a wedding (one’s own notwithstanding): I deeply enjoy the extraordinary efforts that go into producing a wedding, no matter how small or large. I enjoy seeing how the alchemical results from the agonizing contradictions inherent in weddings – the stress, the angst, the torment of making decisions on details that, in most other situations, have negligible importance; but, in the context of a wedding, the importance of those details is magnified a hundredfold – all of this suffering to produce what is supposed to be one of the happiest days of a couples life.  What comes out of this strange crucible is what makes a marriage, and getting to participate in the ceremony that launches that marriage – after all the suffering and planning is done – is one of the great joys of my life. 

So, I collect weddings in my memory like little mental candies of happiness that I pull up for myself every once in a while. Someday I might write a little something about those memories and all of my favourite weddings over the years.  But not today.  Today, I want to talk about one specific wedding.

Last week my daughter and my (now) son-in-law got married.  It was, even adjusting for my bias as father of the bride, one of the most beautiful and wonderful weddings I’ve been to.  Easily in my top three! With over 600 phots of the three day event (not including the “official” photos, which I have not seen yet) it was an event well and truly celebrated!

Setting aside, for a moment, the months of planning and preparing by Kathleen and Matthew, the Wedding Events got underway on Thursday with the rehearsal and rehearsal dinner. The rehearsal included entrances, exits, transitions, and tears! It’s weird to think of a rehearsal as something to get emotional over, but the feelings were undeniably big!  Pastor Grant walked us through the whole thing with charm and enthusiasm, keeping it all light and moving along at a brisk pace. By the time we were done, everyone was feeling comfortable and ready for the big show.  

Then came the rehearsal dinner.  So many more people and so many more feelings!  If you’ve read the previous blog posts you are aware that the past couple of months have been unexpectedly challenging. As a family, we were in need of a good celebratory party, and the rehearsal dinner was a perfect overture to the main event.

Family and friends from both sides had been showing up for the past few days, and more arrived that evening to join us all at the dinner, with only a few unfortunate exceptions.  Kathleen’s grandmother (Carol Anne’s mother) needed to spend some time in the hospital. So, Carol Anne’s sister and brother also spent time at the hospital.

Back at the rehearsal dinner, food and conversation were flowing with new friends and family arriving through the evening.  The crowning moment for me came when my two oldest children and their partners arrived.  That marked the first time I was in a room with all four of my children in 19 years.  I experienced so much joy in that moment it was hard to process. Fortunately, I had a couple more days of the same to process and properly appreciate this juxtaposed event. In the spirit of full disclosure, I am still processing the entirety of the emotional and psychological impact this has had on me; stay tuned for a separate post on that!

Fast forward to the next morning – the morning of the big show! 

Wedding day!

Yowza!  

If you have had a child of your own get married you can let me know if any of this sounds familiar: For me, the Wedding Day Feelings were many , diverse, and omnipresent ,with each one getting at least one solo in the extended, improvised jam session. Joy, yes, and sadness, of course.  Let’s not forget a whelming level of pride. There was, for me, also a strange sense of relief: relief that the day was finally here; relief that I was going to be able to manage migraine symptoms; relief that my wife and I were doing this together; relief that this marriage was good

You know that good feeling? That feeling that, however it actually plays out, whatever it is, it will be good.   That feeling persisted all day and into the night.  Our whole extended, chosen family was around and present and enthusiastically helping out to make sure we all arrived at the church on time, well dressed, well fed, and in the moment.

The morning started off with the our youngest’s partner Zamira making breakfast for the whole household and bride’s side wedding party.  What a spread!  Throughout the morning, while people woke up and showed up, Zamira made sure everyone was well fed and well hydrated, and she still got herself ready on time, chauffeured people to the church, AND she still went on to sing during the ceremony.  So much amazing work and support from her. (Hey Tropicana – maybe send some money her way and get her to promote your product?)

Our close friend Lorri came over before she was even awake to do hair for the Bride and Bridesmaid (Martin) and then dashed away to get herself ready for the ceremony. Diane and Jim arranged for our rides. Anika was at the ready to help with all the clothes. Drin took charge of Kathleen’s phone and documented our morning. I learned what a circle selfie is. 

Meanwhile, over at the groom’s morning, there appeared to be much laughter and merriment (I wasn’t there.  I’m just making guesses on the photos I’ve seen.)

Pastor Grant officiated a wonderful, moving, and heartfelt ceremony that clearly reflected the couple. Each moment seemed to carry a little bit of magic, and all those bits of magic cast the spell that carried Kathleen and Matthew through the transition from two separate people into a single partnership embodied in two people. I cried, a lot.  My wife cried.  The Bride and Groom cried.  (I’m pretty sure both of Matthew’s parents cried, but I wasn’t looking at them, so I can’t say for sure.) It was amazing.  It was wonderful.  It was beautiful.  I don’t want to take you through a moment-to-moment description because it won’t do it justice.  There is a recording of the ceremony and, if I am able, I’ll link it here for you to enjoy if you want.  I recommend it. It is very moving.

I’d like to take a moment, as we move from the church to the reception, to mention our family friend Julianna Tomaselli.  Julianna’s involvement in the execution of this wedding was instrumental – not only for all the help and advice she provided, but also for the confidence and calmness she brought to the planning and preparation.  When Carol Anne was in the hospital and Kathleen realized she needed to change strategies to get everything done, Jullianna was there to help them out. 

I also want to stop and mention the amazing mother-of-the-groom, Julia.  Julia was the other person my daughter turned to and received immense support from while her parents were otherwise distracted.  Kathleen expressed much appreciation for her relationship with her (now) mother-in-law.  Besides being thrilled that my daughter has married into such a warm and welcoming family, I am overwhelmed with gratitude for well Julia and Kathleen fit into each other’s lives.  Julia’s participation in the execution of this wedding cannot be overstated.  I won’t get into an exhaustive list, but notice all the flower arrangements in the photos?  Julia grew and arranged those.

Which brings us to the reception!  Wowwee Zowwee! What a good reception!  First off, take a look at these table centers: 

The flowers, as I mentioned are by Julia.  The rest – the log cutouts, the number plates, the vases, all of that – was designed and made by Kathleen for every table.  This is the kind of effort, energy, and attention to detail that permeated the entire 3-day wedding event. 

The event was held at the Esquimalt Gorge Park & Pavilion.  What a beautiful venue!  Overlooking the Gorge with floor-to-ceiling windows, it was the perfect backdrop for a great few hours of food and conversation and celebration of the newlyweds. Again, Julianna’s touch was on display in the setup and flow of the event.  The tables were all fun and interesting groups.  It was heartening to see that the communal energy shared by Dawsons and Sargents at the rehearsal dinner was not a fluke!  The mix of families and friends was a lot of fun.  Connecting with our new extended family and friends while reconnecting with family and friends we hadn’t seen in a while all lent itself to a jovial and celebratory feeling that carried itself right through the official photos and into the sanctioned after-party that we held at our house.

There were, of course the regular speeches that are given at this sort of event.  I’ve included links to the recordings of those speeches as they were all lovely (even mine!) and I think they reflect both the spirit of the wedding and the depth of emotion that the wedding invoked in the community.  The quality is what you might expect from phone recordings, but they are worth it!

Recording 1 – Father of Bride

Recording 2 – Father (and Mother) of the Groom

Recording 3 – Maid of Honour

Recording 4 – Best Man

The after-party was a loose and casual affair that Carol Anne and I decided we want to host for anyone who wasn’t quite done celebrating.  We took a short break between the reception and the party for people to change and nap if they chose.  We had no real plans beyond having drinks and food and chairs, and it turns out that was all anyone wanted.  With chairs set up on the lawn in the late afternoon and evening, people from both bride’s and groom’s side gathered to chat and share time.  We talked, we laughed, we all got to spend a little more time with each other while the bride and groom got to spend time with just each other.  The evening ended in a slow fade as everyone took their own time to call it a night.  It was all an easy slow fade knowing that we would see almost everyone again the next morning at brunch.

Saturday morning dawned sunny and hot – the perfect weather for an outdoor send-off brunch!  Many of the previous days’ and nights’ events were again in attendance.  Saturday morning also saw the return of the grandmother of bride!  My mother-in-law returned from the Saanich Peninsula hospital in time to enjoy some of the bruch and company.  People came and went, ate heartily, and generally were able to enjoy time with the newlyweds and each other without any time pressure while gifts were opened and appreciated by Kathleen and Matthew.  

As the morning became the afternoon, the guests all chose their own time to make their exits. The numbers slowly dwindled, but the conversations and visiting continued until we were left with just ourselves and immediate family.  With planes and ferries to catch, our world cross-faded from wedding back into the rest of our regular lives.

So, what with one thing and another, here we are!  Our house is much quieter.  After a week of guests and visiting, the absence of crowds, along with the departure of Kathleen, has left our house feeling very empty.  We are left with a few leftover belongings and a couple of cats to be collected after the honeymoon.  Otherwise, we are adjusting to the new normal of having a child firmly launched into a life independent of us.  

The next few months promise to be busy and interesting in their own right, starting with the acquisition of two new kittens! But that is all for future posts.

For now, I am reflecting on all the changes that this wedding marked for me personally and for our family as a whole.  I expect that many of these reflections will come out in some of those future posts, but for now, I leave you with this:

Regardless of the statistics or the pessimism or the cultural criticism that tells us that getting married is an outdated institution, I still believe deeply in marriage and the magical transformative power that a marriage has on its members.  I have experienced this myself with my wife and our marriage.  I believe I am seeing it in Kathleen and Matthew.  And I am so excited to see what other magic their marriage will produce, not only for themselves, but for all of us in their extended family and community.

A quick postscript! Below are the links for the local businesses that were used. I have received no compensation for promoting these businesses; I just think local businesses are important.

Fig Deli

Victoria Party Rental

Esquimalt Gorge Park & Pavilion

Island Culinary Service

Good morning everyone! Carol Anne here.
It’s been a week since I woke up in the hospital and received the news that the surgery had been so successful within minutes. My recovery started to be equally amazing. I read the above and realize you all had a very different experience than I did. From my perspective. I had so lost a piece of myself and lost all the words to be able to describe how that was – that was the tumour – at the same time there was the cyst which was filled with fluid and was pushing my brain around, causing me to lose balance, lose muscle control, lose facial control control, and lose bladder control. So, waking up after the surgery almost immediately with the pressure from the cyst released, I felt stable again. My muscles did what I asked them to, and I very quickly regained physical strength.

Underneath that I found a piece of my brain that I’ve lost for a while, and I didn’t realize what part of me had disappeared until it started to come back. One of the things, perhaps the most notable to me, was lying recovering in a neuroscience floor where absolutely everyone around me had just had brain surgery. My brain eavesdropped and listened and learned, and it’s been a while since since I’ve chosen to learn and derive such pleasure from it.

The other really important thing to mention is that the healthcare system did not fail me when I needed it. It was there, and I was served, and I have been healed. The failure is more in our communities and the relationships that we no longer make time. My new doctor had seen me in person a couple of times, but until Morgan came in stamping his feet, he confessed that he didn’t know who I was so he couldn’t see a difference. So it’s less about Drs and access to Drs and more about building those health relationships where people learn you, know you, and care enough to pursue the next steps. It is more about the delivery of health care, than even the access to it. the reports are there, the caring delivery concepts – its time to not just add more stressed doctors, but to rebuild and make the systemic changes that allows caring back into such a caring profession.

So many blessings have come from this experience. I feel myself again – better than I have in over a year! As many of you know, we have an open household and a large family and all the work that we spend building relationships just came back to us in spades when we really needed it. All of you were much more afraid than I was. I kept hearing of our wonderful friends who stepped up and were there for my kids and my family

A lot of the anger that I have about the situation comes from what we normalized. About 10 years ago I remember going to the doctor being exhausted and I was told “you are a working mother of course you’re exhausted. The workplace is full of stress. You’re also looking after your children, how could you be anything but exhausted.” Was I having headaches? Sure. Did I identify them as being such? No. In hindsight, we’re seeing all of the justifications. I normalizied symptoms that I shouldn’t have been normalizing: the headaches were caused by not enough caffeine; the vomiting happened because I carry my stress in my gut; and so on. The only truly distinct thing that I could say over and over and over again is that “I’m just not myself.” But as a 50-year-old woman, it was so easy to Normalize that as menopause and depression and burn out.

Thank you all for following along this journey with us, not just in these postings, but actually walking beside us. We are also very very grateful. There is a myriad of things that could have gone really wrong in the middle times – I recognize not only my rediscovering my language – I can find the regular words – but my 25 cent words have come back too!

It could’ve turned out completely differently and all I can say is, for the moment, I’m alive. I am feeling well and we are really working hard at the moment to be in the moment and celebrate the moment where we are finding ourselves for now.

We are at the beginning of a journey and we will keep you posted as new information evolves. I will be going on Long term disability and Morgan and I are going to take some time, and enjoy some time to make space for everything that happened.

July 2, 2024

Greetings to all our Friends and Family,

Some of this will be news for some of you, and some of this will be repeat information for some others. Thank you all in advance for taking the time to read.

On Monday, June 24th, 2024, a sizable brain tumor was discovered in Carol Anne’s frontal lobe.  It was removed on Thursday, June 27th. I thought I would try to share the basics of the story of how we got here with all of you.  I know there are some of you in our lives that have not heard all the news yet, so we wanted to share the story with everyone on social media.  This way we can continue to share with everyone what we can expect over the next weeks and months of Carol Anne’s recovery as we discover it ourselves.

For the past 6 to 8 months, Carol Anne has been complaining about not feeling like herself, although that feeling has been creeping up on her for much longer than that. As we take the time to reflect on the impact this unknown tumor has been having on Carol Anne, we are becoming aware that she has probably been affected for at least 18 months, if not longer.  

We started to become aware that something unusual was happening to Carol Anne at least 8 weeks ago, but it was hard to identify exactly what. Historically, Carol Anne has struggled with mental health issues around depression.  Indeed, this has been a primary diagnosis for her for more than 10 years.  As a result, both Carol Anne and I were attributing her recent struggles with her confidence, her mood, and her choices to her mental health struggles  

As a number of these symptoms increased in severity, her behaviour was increasingly uncharacteristic.  Because this had been relatively gradual, we were still working on the assumption that this was mental health related, combined with the effects of perimenopause/menopause.  Carol Anne worked diligently to try to connect with doctors and health professionals to get some sort of diagnosis and assistance, but the state of health care in BC is in bad shape, and family doctors are few and far between, so Carol Anne continued to make her best guesses and treat herself with random Telus Health doctors.  She started taking time off work to focus on her health, but everything seemed to be getting worse.

Right around my birthday, May 23rd, things started to get worse, faster. She started losing time – she would forget what time it was; she would lose herself in her phone or tablet playing the same game over and over; she would go on online shopping sprees without thinking through what she was buying.  She started losing situational awareness, and we started to have to watch her carefully when we were out.  Her texting became increasingly erratic.  Her attempts to solve problems (her greatest strength) became incomplete, ill-timed, and poorly communicated, if at all.  Additionally, she started falling frequently, and when she fell, she could not figure out how to move her body to right herself.  She had a harder and harder time both getting her body to respond and responding to her body. [Included in this have been problems of bladder control.]  She, of course, was still thinking all of this was her own fault and that she needed to be doing something to get better – better diet, more exercise, etc.

Without going into all the specific details, she was less and less herself, and her choices were increasingly suspect.  Through all of this we still did not have any clear medical help except for the specific help Carol Anne could ask for from naturopaths and clinic doctors.  That help, though, was based on her previous diagnosis of depression and our own incomplete self-diagnosis, not on a medical diagnosis, so they were really only providing what she was asking for.

In the end, in desperation, we turned to private health care and paid much money to join a private practice. {A brief aside – Fortunately, this was not a “pay for a doctor visit” kind of practice, but rather a practice committed to providing a team of health care support that is interested as much in preventative medical care as they are with responding to acute medical symptoms.  We cannot emphasize enough how happy we are with the Beta Team-Based Healthcare group.  We would not have ended up with the care we received, and will be receiving, if Carol Anne had not found them. Setting aside the very Canadian cultural aversion to paying for personal health care out of pocket, we would like to encourage everyone to support this kind of health care.]

On Monday, June 24th, after a weekend with lots of falls, physical accidents, too much lost time, too much loss of communication from Carol Anne, and some very questionable choices, I took Carol Anne in to see the doctor with me describing my observations.  After a couple of very brief tests, the doctor strongly recommended we go to the hospital and get a CT scan right away.  Additionally, he insisted strongly that we go to the Victoria General Hospital, as that’s where the neuroscience team is based.  We proceeded to do this.

[Another brief aside – We cannot say enough good things about all of the staff, doctors, and nurses who work at the Victoria General Hospital.  The level of care, compassion, and dedication we received over the 6 days in hospital was amazing. Understanding that this care was delivered in spite of being under-funded, under-resourced, and over-worked makes the care even more impressive and us all the more grateful to have received it.]

We were seen without too much delay, fortunately, and the immediate results of CT scan initiated a series of health related actions that saw Carol Anne admitted to the hospital through the ER.  The ER doctor, sometime in the middle of the 3rd period of game 7, while we were parked in the ER hallway, explained to us that they spotted a very large tumor sitting on the executive function part of her brain, and it was large enough to also be affecting her motor control functions on both sides of her body.  An MRI was scheduled to more exactly identify the extent of the tumor and to check to see if it is a primary tumor or if there was yet more to worry about.  (Turns out it is the primary tumor – they have found nothing else at this point.)

So then, starting that Monday, she was placed under acute observation on the neuroscience floor while we waited for her surgery slot.  Carol Anne was in a low-stimulation ward, and her symptoms had progressed quite far by that point, so she had to wait without any electronic devices. This was not her favourite way to wait – she tried every tactic her tumor-clouded self could think of to get someone to bring her home. Fortunately, we all wanted her to stay in line for surgery more that we we wanted her home.

 Thursday, June 27th was, finally, surgery day.  After a bit of worry through the day because Carol Anne was accidentally fed breakfast that morning, she was wheeled away to the OR Thursday afternoon.  After several hours of (necessary) silence, I received a call from the surgeon.  

(Another aside – I would like to encourage all doctors to mentally prepare the first sentence to waiting family members so that there is no pause between greeting and the first sentence.  I cannot begin to express how many thoughts passed through my head in the 1.5 seconds between “Hello, Morgan? Dr. Fleetwood here.”  and “The surgery went very well!”  I lost years of my life in that 1.5 seconds)

The surgeon was thrilled with how the surgery went.  I could hear it in his voice on the phone, and Carol Anne says he was bouncing in the recovery area as he was talking.  I think the appropriate word here would be “chuffed.” 

They got everything that they could see!  It went quickly and easily, with a minimum of bleeding, so she didn’t need a transfusion. However, he emphasized that, of course, they cannot see the microscopic stuff. Further to that, he was very optimistic that, having drained the fluid around the cyst, a lot of her really extreme symptoms would start to clear up pretty quickly, and he’s very optimistic about her recovery on that front. He said nothing went strange in the surgery. He was so very very happy with the way the whole thing went. 

Carol Anne had a follow up MRI scan Friday morning, in order to confirm that they have, in fact, gotten everything that they can get. As of Tuesday, July 2, we have not yet seen the results. 

Since the surgery, Caroline has been feeling much better and increasingly herself again. The first two days after the surgery saw a great and dramatic improvement in Carol Anne. Her motor functions have become much more in control,  she’s much more aware of the difference between how she is now and how she was before the surgery, and she is continuing to discover the extent of how badly she had been affected by this tumor.. Her mood is improving, although she is going through bouts of anger, understandably, about how long it took to get treatment given how quickly she started improving since the surgery. 

We haven’t seen the surgeon since the morning after the surgery, but we have appointments that are already being set up for the next couple of weeks to follow up with many doctors, occupational therapists, physiotherapists, nutritionists, and all sorts of other specialists yet to be named. She was discharged on Sunday, and she is now home and learning how to recover from the comfort of home. She is seeing visitors!  If you’d like to see Carol Anne, please send us a text and we’ll be happy to see you.

I know there are probably many questions that aren’t being answered by this post, but that is either because we don’t yet have the answers or because we’re not yet ready to share. 

There is much physical and mental recuperation that all of us need to go through over the next weeks and months, but we are grateful that this is the challenge we have to face now rather than something else. 

We will try to post periodic updates once we’ve settled into routines at home and we have more news to share. This experience  has reinforced for us just how much attention and reform needs to be dedicated to the fundamental support systems of our society (health, education, shelter, and food security.) Whatever our future holds, advocating for an integrated vision of change will be a big part of it. 

In the meantime, we are turning our attention to Kathleen’s and Matthew’s wedding and upcoming move! We, all of us, are looking forward to seeing friends and family and sharing in celebration after this incredibly challenging period.

With love and appreciation,  

Carol Anne and Morgan